In the end, Cedric (the retired GP advising me) and I felt we had achieved something from our face-to-face meeting after over a year of unsatisfactory answers to written questions/deadlines missed/stonewalling etc. The complaints team has been completely overhauled and changed and we met new people.
Many hospital practices are being changed: the way handovers are done, the ward rounds, the communication with relatives and friends. There was a willingness to take criticism on board and to act on our suggested improvements.
They were moved to tears by my account and disgusted by the matron/nurse on ICU etc. The new head of Nursing brings with her a new regime and new attitude. Really , really very sorry indeed.
They will also run Encephalitis awareness sessions.
They would very much like me to go back at some point and re-tell Dad's story again, if I can bear to , as they say people need to hear how terrible things can be . Not sure I can. They will, in any event, be using Dad's story as a case study in training sessions since it covers so many aspects of medicine and hospital 'care'.
It won't bring Dad back but I think he'd feel we'd fought his corner and got something good to come out of the horror.